Posts Tagged ‘genetic’
The draft document “Guidelines for Human Biobanks, Genetic Research Databases & Associated Data” (July 2009) is being prepared for release for public comment.
The Office of Population Health Genomics (Public Health Division) WA Health has been coordinating the development of guidelines which provide principles and best practices for the establishment, management and operation of research biobanks and DNA databases in WA. The guidelines have been developed for WA Health but are intended for use by both government and non-government research organisations in WA.
Hope received formal acknowledgement that she “has been involved in the stakeholder consultation process, contributing to the two community consultation events which informed the development of the guidelines … also gave a presentation on the consumer perspective. An acknowledgement has been included on pages x and xii that mention her by name.”
The Office of Population Health Genomics, Department of Health has cordially invited Hope to attend a seminar titled “Challenges for Society in the Genetic Information Age”. This event will be held on the Monday 11th May at Grace Vaughn House, 227 Stubbs Tce, Shenton Park.
This seminar will focus on genomics, ethics, biobanks, biobanking community forums similar to the one Hope presented at and participated in 2008, held in Canada.

Event: 11 May 2009 - Challenges for Society in the Genetic Information Age